SAN FRANCISCO, California- Clinical peddling unproven treatments stem cells are on the warnings of the International Society for research on stem cells (ISSCR). The company has talked for years against the purveyors of dubious therapies that have a scientific basis with little or no. Now they go a little further. This month, the company launched a new website for patients considering such treatments, which clinics around the world claim can treat tens of lupus paralysis conditions. Clinics that do not meet the minimum standards for independent monitoring of patient safety will soon appear on a blacklist, warning potential patients away.
At the annual meeting of the company here last week, President ISSCR Irving Weissman, a researcher on stem cells at Stanford University, said such clinics prey on vulnerable, often terminally ill patients, taking their money and precious time to their family and loved ones. "And they use us," he told the meeting delegates, when they try to enjoy the legitimate excitement surrounding research on stem cells. He also issued a warning to members of the society: "Some in this audience," he said, lent their names as scientific advisors to some of the clinics in question. Later, at a press conference, he told reporters that the company has sent letters to several members, warning them to dissociate clinics. Those who do not comply will face sanctions or possible expulsion from society, he said.
The website, entitled "Focus on the stem cell treatments," has a comprehensive list of questions for patients and their caregivers to ask about potential treatments and a copy of the Patient Handbook society on stem cell therapies in English, French, German and Italian. It also lists the Top 10 things to know about stem cell treatments, including why and how unproven treatments may be worse than no treatment at all. patients are encouraged to submit the names of clinics, individuals or organizations that provide treatment for the company's experts to review. ISSCR ask the supplier if its treatments have been approved by an independent ethics committee review and if it has the approval of the relevant legal authority, such as the US Food and drug Administration or the European medicines Agency. the clinics that provide sufficient documentation in a few months will be on a list indicating they have appropriate oversight and protection of patients in place. Those who do not appear on a second list of clinics that have failed the exam. The company has received dozens of requests within 2 weeks since the website launched, Weissman said. The examinations will be at least several months, he said, so that the first lists of clinics should appear this fall.
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